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Grandmother ‘turning to stone’ because of ultra-rare disease is adamant she won’t die as she is ‘a miracle case’

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A terminally ill gran stricken with a rare immune disease which “turns skin to stone” believes she won’t die — because she is a “miracle case”.

Trish Rainbow-Noack has seen her skin harden for the past two years ever since she was diagnosed with scleroderma, a debilitating disease which affects internal organs and connective tissue.

The 58-year-old, from New South Wales, Australia, was given between two to five years to live after her diagnosis in June 2016, but now her progress is defying doctors.

Trish Rainbow-Noack was diagnosed with the debilitating scleroderma in June 2016

The grandmother of nine said: “It causes hardening of the skin and affects the internal organs like the heart, liver and kidneys.

“It is a life-threatening disease. There is no cure.

“But there’s always hope you’re one of those miracle cases.”

Trish is now undergoing trial stem cell transplant in a bid to lengthen her life — but she believes it will help her beat scleroderma.

Trish, pictured with her partner, has been raising awareness of the rare condition
Trish, pictured with her partner, has been raising awareness of the rare condition

Trish and her two daughters want to help the research of scleroderma
Trish and her two daughters want to help the research of scleroderma

Speaking to 9news.com.au , the mother of two added: “It’s hard for anyone to think you’re dying because my family is everything to me.”

Trish and her family are now raising awareness for the disease and funds to help its research.

Her family walked some 292 miles across tough rural terrain in New South Wales to raise the equivalent of more than £16,000.

The mum is undergoing treatment to extend her life
The mum is undergoing treatment to extend her life

Trish and her relatives have raised thousands of pounds already
Trish and her relatives have raised thousands of pounds already

And in June, the clan will hike more than 300 miles in two weeks to raise more money.

The journey will end on June 29, which is World Scleroderma Day.

To contribute to the cause, visit the family’s donation page.

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